Desktop Experience Required

This webpage is optimized for desktop use. For the best experience and full functionality, we recommend accessing this page on a desktop computer.

My Priorities

Part of deciding if you are ready to engage as a patient partner on a clinical research team depends on what areas of the research process you feel you are best able to contribute as a patient partner.

What is My Priority?

The different areas where you might play a role on a clinical research team are listed below. When you hover over them, a box will appear with what each of these parts of the research process include. Arrange these in order of priority based on where you think you could add the MOST to LEAST as a patient partner on a clinical research team. 

Research Process Steps
  1. 1
    Identifying & Prioritizing
  2. 2
  3. 3
    Development of the Grant Proposal
  4. 4
    Preparation for Execution of the Study
  5. 5
    Data Collection
  6. 6
    Analyzing & Interpreting Data
  7. 7
  8. 8
  9. 9
    Monitoring & Evaluation

What are the levels of engagement?

Identifying where you will be engaged in the study is only the first step in determining your priorities. It is also important to consider your level of engagement.

Levels of Engagement

  • Inform — You will be kept informed about the study.
  • Consult — In addition to being informed about the study, the investigators will listen and acknowledge your concerns.
  • Involve — In addition to being informed about the study and having the investigators listen and acknowledge your concerns, they will also let you know how your feedback has been used.
  • Collaborate — The investigators will work with you to include your advice into study decisions as much as possible.
  • Empower — The investigators will implement what you decide.

Below are the top 3 research process steps that you prioritized in the list above.

For each priority, select the Level of Engagement you’d like to have as a patient partner in the Research Process/Lifecycle.

Note: You can use the Level of Engagement more than once.

PrioritiesResearch Process StepLevel of Engagement
1Identifying & Prioritizing
3Development of the Grant Proposal