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Part of deciding if you are ready to engage as a patient partner on a clinical research team depends on how you imagine seeing yourself contributing to a research project. The best way to do this is to think about the steps of the research process.
Potential roles for patient partners on clinical research teams were presented in the Introduction section What are Potential Roles for Patient Partners on a Clinical Research Team?. These were described using the steps of the research process and are outlined below. When you hover over the Research Process Steps below, a box will appear with a summary of each step. We want you to think about each of the Research Process Steps.
Please choose the top three steps of the research process where you imagine would be most interesting for you to be engaged with a clinical research team. Hold your cursor on each of your three priorities and drag each step into the first, second or third position. NOTE: You can drag each step by clicking and holding your cursor directly on the centre box or by clicking and holding your cursor on the three lines to the right of the centre box. If you wish, feel free to prioritize all the research process steps. However, it is only your top three that will be a focus in this decision aid.
The IAP2 Spectrum was described in the Introduction under What are the Levels of Public or Patient Participation and Engagement. The IAP2 levels of engagement have been described as inform, consult, involve, collaborate, and empower. Healthcare Excellence Canada defines a Patient Engagement Framework according to the following levels: inform, consult, involve, collaborate, and lead.
Identifying where you will be engaged in a study is only the first step in determining your priorities. It is also important to consider your level of engagement. Below are the top 3 research process steps that you prioritized in the list above. For each priority, select the Level of Engagement you’d like to have as a patient partner in the Research Process/Lifecycle. You can use the Level of Engagement more than once and
Below are the top 3 research process steps that you prioritized in the list above.
For each priority, select the Level of Engagement you’d like to have as a patient partner in the Research Process/Lifecycle.
Note: You can use the Level of Engagement more than once.
| Priorities | Research Process Step | Level of Engagement |
|---|---|---|
| 1 | Identifying & Prioritizing | |
| 2 | Design | |
| 3 | Development of the Grant Proposal |
