Patients are beginning to have more engagement in the design and data analysis of clinical trials and in the interpretation or dissemination of clinical trial results. There has also been limited sex/gender reporting in clinical trial research. Our Phase 1 Canadian Institutes of Health Research (CIHR)-funded project allowed us to develop two decision aids (one for patients and one for investigators) to provide knowledge about sex/gender and to help patients and investigators determine if they were ‘ready’ to engage as/with a patient partner in a clinical trial.
Funding from the Ontario SPOR Support Unit (OSSU) and recent CIHR funding is now allowing us to do further patient-oriented research (POR) training and disseminate our decision aids to multi-stakeholders across Ontario and beyond (Phase 2). We are inviting interested patients and investigators to join us in a 1.5 hour virtual POR training session that will provide an overview of the decision aids and an opportunity for us to hear your feedback.
If you are interested in participating in this initiative, please sign up to register for a webinar about using the decision aids. We will be hosting the same webinar on multiple dates to allow for flexibility of schedules. Once you have registered for a webinar you will receive your individual link to attend.
Thursday, November 19, 2020: 9:30 am – 11 am EST – register here
Monday, November 23, 2020: 3 pm–4:30 pm EST – register here
Wednesday, November 25, 2020: 3 pm–4:30 pm EST – register here
If you have any questions, please contact Monica Parry (spor.decisiontool@utoronto.ca) or Dawn Richards (dawn.richards@ctontario.ca).